We are Ellie, Michaela, Juanita and Cara. We each have our unique stories to share, which we hope will inspire others to make the most of life and take on the daily challenges that SMA can bring.

We would love your help too! Look out for our upcoming Be Inspired hub updates, where you will be able to share your own inspiring story of living with SMA.

While we are preparing our first tips and tricks to share in the coming months, we encourage you to sign up so you get the latest information as soon as it appears. In the meantime, it's nice to meet you!

Ellie

There are many challenges we face living with SMA, and I am always looking for ways to make life a little easier. I am committed to protecting the environment, I am an animal activist and politically active, so I am constantly on the go and attend many functions. I am looking forward to sharing my tips and tricks.

Michaela

Hey awesome person reading this I am Michaela. I’m 25 and I have Spinal Muscular Atrophy type 2. No matter what, I tackle every challenge with a can do attitude. I hope you find some inspiration from my content and look forward to you tuning in soon <3

Cara

Living with SMA my whole life, I am passionate about the future progression and advocacy by and for those of us with lived experience. I enjoy the chance to connect with others with SMA, and have learnt so much with the SMA community. I believe that engineers and experts in a variety of different fields would benefit from the utilisation of skills and knowledge of those living with SMA, co-design is the way forward! Let’s make it happen!

Juanita

As a mother and grandmother, I am passionate about prioritising my family life. SMA has significantly challenged my ability to be independent – it’s my primary focus in life. But now I realise it is ok to ask for support. The more support I get the more I can be with my family.

Share your unique story

We would love your help to inspire others living with SMA, by sharing with the community how you make the most out of your life. To share your unique story of living with SMA, please provide your story and details below, and read through the consent and privacy notice.

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Thank you for sharing your inspiring journey! Please check back regularly for updates.


Consent and Privacy Notice:

Biogen Australia Pty Ltd, together with its affiliated entities (‘Biogen’), takes your privacy seriously and complies with the Australian Privacy Principles. We handle all personal information collected and held by us, in accordance with our Privacy Policy, which is available at www.biogen.com.au/privacy. By submitting your information to this site, you consent to the whole or part of your story and your personal information, which may include health information (e.g. that you live with spinal muscular atrophy) being disclosed and published by Biogen and third parties with whom it is working – solely for non-promotional educational and disease awareness purposes associated with the Together in SMA website.

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