This is a hub of shared SMA experiences, useful information, life hacks and tips and tricks. Developed by us – adults living with SMA – for you, the SMA community.
We are Ellie, Michaela, Juanita and Cara. We each have our
unique stories to share, which we hope will inspire others to
make the most of life and take on the daily challenges that SMA
We would love your help too! Look out for our upcoming Be
Inspired hub updates, where you will be able to share your own
inspiring story of living with SMA.
While we are preparing our first tips and tricks to share in the
coming months, we encourage you to
so you get the latest information as soon as it appears. In the
meantime, it's nice to meet you!
There are many challenges we face living with SMA, and I am
always looking for ways to make life a little easier. I am
committed to protecting the environment, I am an animal
activist and politically active, so I am constantly on the
go and attend many functions. I am looking forward to
sharing my tips and tricks.”
Hey awesome person reading this I am Michaela. I’m 25 and I
have Spinal Muscular Atrophy type 2. No matter what, I
tackle every challenge with a can do attitude. I hope you
find some inspiration from my content and look forward to
you tuning in soon <3
Living with SMA my whole life, I am passionate about the future progression and advocacy by and for those of us with lived experience. I enjoy the chance to connect with others with SMA, and have learnt so much with the SMA community. I believe that engineers and experts in a variety of different fields would benefit from the utilisation of skills and knowledge of those living with SMA, co-design is the way forward! Let’s make it happen!
As a mother and grandmother, I am passionate about
prioritising my family life. SMA has significantly
challenged my ability to be independent – it’s my primary
focus in life. But now I realise it is ok to ask for
support. The more support I get the more I can be with my
We would love your help to inspire others living with SMA, by
sharing with the community how you make the most out of your life.
To share your unique story of living with SMA, please provide your
story and details below, and read through the consent and privacy
Thank you for sharing your inspiring journey! Please check back
regularly for updates.
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which is available at
www.biogen.com.au/privacy. By submitting your information to this site, you consent to the
whole or part of your story and your personal information, which
may include health information (e.g. that you live with spinal
muscular atrophy) being disclosed and published by Biogen and
third parties with whom it is working – solely for non-promotional
educational and disease awareness purposes associated with the
Together in SMA website.