It is recommended that SMA care is coordinated through a neurologist or paediatric neurologist. Neuromuscular clinics specialising in SMA can provide proactive and coordinated care.
Centralised appointments that enable individuals with SMA to see all necessary specialists in a single visit
Assistance for those who need to travel significant distances (parking, meals, lodging, etc.)
Collaboration and sharing of information among physicians that allows more strategic, coordinated care planning
Locations of treatment clinics can vary. While some people may be fortunate to live near one, those who don't may choose to receive regular care at a medical centre that is closer to home, or build their own care team with specialists in their community.
The Children's Hospital at Westmead
Queensland Children’s Hospital
Royal Children’s Hospital
Sydney Children’s Hospital, Randwick
Women's and Children's Hospital
Perth Children’s Hospital