Spinal muscular atrophy (SMA) impacts hundreds
of Australians. Together in SMA aims to unite
the SMA community to spread awareness and
encourage people of all ages living with SMA.

Samuel, living with SMA

The characters shown are real patients and the required consent to use their stories has been obtained from the patients and families.
Photographs are for illustrative purposes only.

Together in SMA with Biogen

Supporting individuals with SMA and their carers

Together in SMA seeks to bring you up-to-date information about the condition and its symptoms, care options and insights from experienced members of the SMA community. We’re grateful for the feedback and involvement of the SMA community. We look forward to working together into the future, to provide a comprehensive resource for people living with the daily challenges of SMA.

Understanding SMA
  • What is SMA?
  • Causes and genetics
  • Effects on life
  • Signs and symptoms
Living Well with SMA
  • SMA and school
  • SMA and work
  • SMA Stories
  • Home modifications
Diagnosis and Testing
  • Genetic testing
  • SMA detective work
Supporting SMA
  • Respiratory care
  • Nutrition and diet
  • Physiotherapy and exercise
  • SMA care centres
  • Care team
References:

1. Biogen, Data on File.

Discover stories about lived experiences of SMA, inspiring perspectives, and
useful information that matters and motivates us.

Developed by us – adults living with SMA – for you, the SMA community.
Elie
Elie
Elie

Ellie

Juanita
Juanita
Juanita

Juanita

Cara
Cara
Cara

Cara

Michaela
Michaela
Michaela

Michaela