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Be Inspired

Welcome to the Be Inspired page – here you will ﬁnd real-life stories about lived experiences of SMA, inspiring perspectives and useful information that matters and motivates us. Developed by us – adults living with SMA, for you – the SMA community.

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Get involved in the community

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Posted by: Ellie

“I would advise to build a support network of people with like-minded ideas. If you love singing, get into a singing group. Get into groups, get into the community.

“I’d especially encourage people with SMA to become involved in SMA groups, because SMA is a very unique disability and only other people with SMA can really understand it and appreciate it. There have been suggestions by some clinicians that people living with SMA have an extremely bright and high IQ, as well as determination. So, really, there shouldn’t be anything that should stop us from pursuing our passions.”

For more information about connecting with SMA support organisations in the community, click here.