For people living with SMA, health outcomes correlate with patient care and management of their disease.1,2 A range of care options and careful management of SMA can result in improved quality of life, compared to if left untreated.2–4
The characters shown are real patients and the required consent to use their stories has been obtained from the patients and families. Photographs are for illustrative purposes only.
A set of standards—called standards of care—are in place to support better management and care options for people living with SMA.2,3
These standards have been formulated through considerable research in recent years into the science behind SMA and the different care options available.3
in SMA publications between 2001-2011 and 2011-20215,6*
currently studying SMA7*
There are different aspects to supportive care for SMA. Whether you are classified as a walker or a sitter, SMA management should include input from many different specialists.1,2
This can include psychological support, tailored care plans, genetic testing and care options available to you. Click on one of the links to get an overview of what you can expect.
Summary of the latest SMA Standards of Care for SITTERS
Download in PDF
Summary of the latest SMA Standards of Care for WALKERS
"When I was younger my family helped me out a lot, but now I have the independence of living on my own and my caretakers help me.”
by Andrea, Adult living with SMA
Ask your doctor for further information on managing SMA and specialist referrals.
to learn more about about how to be part of the SMA community