DISEASE STABILISATION REPRESENTS IMPORTANT PROGRESS1

People living with SMA and caregivers, have become aware of the importance of disease stabilisation and its relation to maintaining quality of life.1,3–5

According to a study published in 2012, people living with SMA will continue to experience disease progression, if they continue to lack suitable care and intervention.1

It has become clear to both people living with SMA and their caregivers that it is important to stabilise and maintain motor function for as long as possible, to help support the independence of adults with SMA.1,3,4

HERE IS WHAT PEOPLE LIVING WITH SMA
AND THEIR CAREGIVERS THINK…1

PRESERVING AND MAINTAINING ABILITIES FOR PATIENTS WITH SMA

The perspectives and experiences of people living with SMA are important to the development of new care options. In a recent survey of people living with type II/III SMA and their caregivers it was shown that:1

*Survey was limited to European respondents only.

THE PERSONAL EXPERIENCE OF PEOPLE WITH SMA
DICTATES WHAT THEY WANT OUT OF CARE1

See what others found important:1

RESPIRATORY FUNCTION

Improvement or stabilisation, including coughing and swallowing

IMPROVE PROXIMAL MOBILITY/ FUNCTIONALITY

Getting up, balancing, walking, jumping, running, climbing stairs

MUSCLE STRENGTH

Stabilisation or improvement

Watch the interviews with Samuel (patient) and Michel (caregiver)

Speak to your doctor for
further information about managing SMA

CONNECT

to learn more about about how to be part of the SMA community

The characters shown are real patients and the required consent to use their stories has been obtained from the patients and families. Photographs are for illustrative purposes only.