Resources to live well with SMA

Neuromuscular clinics provide specialised care for neuromuscular
conditions, including SMA. Coordinated care through a
neurologist is recommended, and SMA clinics offer proactive care.

"Living with SMA my whole life, I am passionate about the future progression and advocacy by and for those of us with lived experience. I enjoy the chance to connect with others with SMA, and have learnt so much with the SMA community. I believe that engineers and experts in a variety of different fields would benefit from the utilisation of skills and knowledge of those living with SMA, co-design is the way forward! Let’s make it happen!" - Cara

Living with SMA my whole life
Living with SMA my whole life
Living with SMA my whole life

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Juanita

As a mother and grandmother, I am passionate about prioritising my family life…

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Cara

In the past I compared myself to an able-bodied standard of perfection, it seems so ridiculous now...

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