Resources to live well with SMA

Neuromuscular clinics provide specialised care for neuromuscular
conditions, including SMA. Coordinated care through a
neurologist is recommended, and SMA clinics offer proactive care.

Daily life

The extra complexity of SMA

Consider the extra effort required to live with SMA every day

“I do think it’s important for people living around us to understand the physical effort that it takes to live with SMA – not because they are going to actually understand everything, but just so people can have a little bit of perspective that on top of our everyday life, on top of running a household and our daily outcomes, it takes a lot of additional work… I think that recognition would go a long way.”

- Cara

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